Source - http://fox4kc.com/
By - Andrew Lynch
Category - Port Of Miami Hotels
Posted By - Inn and Suites In West Miami
By - Andrew Lynch
Category - Port Of Miami Hotels
Posted By - Inn and Suites In West Miami
Port Of Miami Hotels |
Christine Swidorsky and Sean Stevenson may be counting the hours
until their wedding this Saturday, but the day will be bittersweet. The
couple’s 2-year-old son, Logan, is dying.
Though Logan was given just weeks to live, the couple, from
Jeannette, Pennsylvania, about 40 minutes from Pittsburgh, plans to
honor him as their best man.
The pictures show a sweet, young boy, deeply loved by his family. His mother, Christine, spoke to CNN.
“Me and Sean wanted to have a nice wedding next July,” she said.
“There’s no way I can get married and not have Logan in our family
photos.” And certainly, Logan will shine in his fine wedding suit. With
120 to 130 wedding guests, there will be plenty to celebrate.
Christine often talks about how Logan’s a fighter who’s always stayed strong.
Born on October 22, 2010, he weighed just 3 pounds. Eating troubles
kept Logan in the hospital, but he kept fighting, kept growing, and was
soon home with his parents and his two older sisters.
Christine originally hoped to call him Sean, after his dad, but Sean
disagreed. So one day, while leafing through a baby naming book, Sean
stumbled onto “Logan,” and it felt perfect to them both.
And for his first year, he grew, he was healthy, and he made his
family unspeakably happy. Even today, as his life nears an end,
Christine struggles to find words to say what an amazing little boy he
is.
Just after Logan’s first birthday, Christine noticed that he wasn’t
feeling well again, and his lips and fingernails had turned white. Over
the course of a month, she took Logan to the pediatrician four times
before the head pediatrician tended to him. When he did, he quickly
called 911.
Christine says Logan shocked doctors at the Pittsburgh children’s
hospital. His leukemia had progressed so far, they were surprised he was
still alive. Chemotherapy was started right away, taking an
extraordinary toll on his body.
Sean and Christine learned more devastating news shortly after: Logan
has a genetic disorder called Fanconi anemia, which most frequently
results in death, most commonly from cancer, between the ages of 25 and
30.
But Logan fought hard, just like he had done as a newborn. He landed
in the ICU but pulled through, and by July 13, 2012, doctors were
prepared to give him a blood stem cell transplant.
After his stem cell treatment, he was free of leukemia for nine
months, eating and acting like any other child. Life started to feel
normal for Logan’s family, but Christine’s gut feeling returned when she
saw Logan acting strange again.
It was cancer again: a mass the size of an orange on Logan’s larger
and better-functioning kidney. Doctors had no choice but to remove the
kidney, just a week before Easter of this year.
Life gained a long-sought-after normalcy for Logan and the family,
except for the twice-weekly visits to a clinic for his chemotherapy. The
therapy, though not a perfect solution for Logan, would hopefully
prevent a recurrence of the cancer, despite being a lower dose than
average.
Logan’s life continued to improve. “He was eating bowl after bowl” of spaghetti, “it was a wonderful feeling,” Christine says.
But then he started getting fevers, then throwing up. His left side
swelled as the mass returned, where the kidney once was. “I thought he
was doing so well … it’s like you take two steps forward, 15 back,”
Christine says. The doctors told Logan’s family that they could only do
more harm than good.
And in June, as the family’s fortunes continued to fail, the Make a
Wish Foundation gave them a trip to Disney World. But after just four
hours there, Logan was back in the hospital. Eight days of torture
ensued, as he had developed an infection and eventually needed to be
flown home to Jeannette.
Finally, on July 26, Doctors gave Logan one to two weeks to live.
But the wedding that Sean and Christine planned for next year
certainly couldn’t happen without him. So with the help of friends and
family, it has been moved to Saturday, not in a banquet hall, but in the
family’s backyard “because it may make Logan uncomfortable” to be in
strange surroundings with so much noise.
His once big, beautiful curls are no longer atop his head, but his
handsome suit will be pressed as Logan will be by his dad’s side on the
wedding day.
Christine doesn’t refer to it as the end for Logan, but as the start
of his “journey.” She is “a different person. I’m a better person; he’s
made me a strong person.”
The strength is in her voice, in her resolve to have her son in her
wedding, and she’s thankful for it. “He has brought so much joy into our
lives. I couldn’t have asked for a better son.
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